Friday, November 27, 2009

God Loves Josiah.....he is the Apple of His Eye.

He pulls himself around the floor on both hands.   Happily he drifts from one room to another as he tries to keep up with his brothers and sister. They all enjoy normal mobilty and accept Josiah as if he does also. One brother is his twin. I wonder if he ever considers that he may have been the one with the handicap? Perhaps he doesn't realise the extent of his brothers disability. After all, he is only nine years old.

Love hugs and smiles abound in a God filled environment. Help is given as the norm and not as a burden.   Chris, Josiah's father left working, not long after his son's birth, to remain at home and help with the daily care.
Frances, his mother laughs all the time, happy and appreciative of her wonderful family and friends. They experience many trials; however the family pray and stick close together surrounded by Gods reassurance.

I was privileged last week to be invited to a 'Fundraiser' for Josiah.   The family desperately need a van to transport them collectively with their son's special wheelchair.   So far they have raised only a small amount. There is a long way to go, but in their faith they believe, for their miracle.

Isaiah 55:11  "So shall my Word be, that goes forth out of My mouth: it shall not return unto me void...and it shall prosper in the thing whereto I send it."

Josiah was born with Large Frontal Encepepholocoale (removed 2002)
Diagnosis: Semi Lobar Holopresencephaly, Gross Neuro Migrational D/O and Dysplastic Cerebellum.
Cerebral Palsy with Hearing and Visual Impairment.
Treatment: Ventriculoperitoneal Shunt implanted at 7 months of age.
So far, seven (7) revisions and bi-lateral grommets.



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Dio ti ama così siamo connessi.